My Diagnosis Story: Part 2

Read the second entry from the moving diagnosis blog series from Elena at Frivolous Mama.

This is the second part of our story, you can find part one here. This is a very honest and emotional and if anything I say offends anyone, I apologise because it really isn’t my intention. There are things in both of these posts I wasn’t sure whether to include for this very reason but I really want to be honest about everything that happened and everything that went through our heads at the time. Reading other families’ accounts of their experiences has helped me enormously and my hope is that by sharing this it might do the same for someone else. I also started this blog with the intention of giving an honest account of my experience of being plus size and pregnant whatever happened and I still want to do that, only now it’s taken a slightly different turn.

You can read the rest of the entry here:

A Diagnosis Story: Part 1 – from Frivolous Mama

Read this moving and honest account of a couples’ diagnosis journey, from the inspirational blogger Elena.

I wrote this nine days into what shall be known henceforth as ‘The Strange Time’. I never had any intention of posting it, it was just a way of unloading everything that had happened out of my head. However, a few people have asked if I would be writing about our experience and although this is incredibly personal and emotional I decided it might actually be good to share it with the world. Nobody expects something like this to happen, I know we definitely didn’t. It’s a long read so I’ve split it into two parts, the next part of which I’ll post tomorrow.

Continue reading:


Looking Up – An inspiring photo book for new mothers

Do you still have your baby book, or does your mum?

All those memories, and all those cards.

Imagine having a baby and no one knowing if they can even say

May your sweet angel bring you much happiness

Ladies and gentlemen look no further forward than this beautiful visual story to help parents become a family when a baby with Down’s syndrome is born. I met the lovely Cornwall ladies this year at the DHG (littlest charity with the biggest heart) family conference and was captivated by their book.  The whole concept is so simple and heartfelt that it deserves being everywhere.

a quick explanation

“Looking Up has been created by the parents of the Cornwall Down’s Syndrome Support Group and features pictorial stories following the early years in the lives of some of their children.

Sometimes it can be really difficult for families to envisage what life with their new baby with Down’s syndrome will be like, particularly if he or she is born with health problems. This book helps to explode some of the myths and shows the reader that given the right opportunities, children with Down’s syndrome develop and thrive alongside their peers.”

the message of the book itself

The message of the book itself:

“As parents of babies born with Down’s syndrome, we all remember those early days after birth and for some of us the great need to find information on the future for our children.

With this in mind the Looking Up Group members, who are a part of the Cornwall Down’s Syndrome Support Group, wanted to reach out to other parents of new-borns with Down’s Syndrome to share positive an uplifting photos of the amazing journey of everyday life with their children.

Each page tells the early years story of a child with Down’s syndrome, showing the ordinary lives of our extraordinary babies as they flourish into cheeky toddlers and then on to school age.

New parents will be facing some challenges ahead but in this book we do not focus on the medical facts or statistics but rather the children themselves.

Sharing the concept and message behind this book and working together with several contributors to produce this amazing publication has been the labour of love for three mums from Cornwall – Vicky, Sandy & Angie.”

how to obtain a copy of this book

“All profits from book sales go directly back into the Cornwall Downs Syndrome Support Group charity and are used to print more LU books to be gifted to as many new parents as possible upon diagnosis in those early and often overwhelming days.

For this reason, although the book is available on Amazon, it is preferred that to purchase a copy the buyer use ‘Edge of Time’ who are a local Cornish bookseller and take a much smaller percentage than other online or high street outlets.

To do so please use this link:

Checkout is secure and shipping is fast and reasonably priced.

Thank you.”