Congratulations on the Birth of Your Baby from Fink



Such a simple word that means so very much in the days after a baby is born.

Eight years ago when Hayley Goleniowska’s youngest daughter was born it took a week for any congratulations cards or gifts to arrive. Natalia had Down’s syndrome and apparently most people just didn’t know what to say.

“It was one of the most hurtful things about that time,” she recalls, “I just wanted people to ask about the birth, how much she weighed, what we had named her. All the usual things.” I don’t blame people for not knowing what to say, but it was difficult.

This new pack of cards Talking About Down’s Syndrome – Conversations for New Parents, produced by Fink and written by Hayley, contains a whole section on getting to know your baby for the unique individual they are, welcoming them to the family and the world and celebrating their arrival.

Friends and family reading the pack will be encouraged to think about ways of marking the new life, as they would with any baby. If stuck for words they could simply lift any of the questions contained within the Your Baby section to break the ice with new parents.

“ How did you choose your baby’s name?”

“Have you kept your baby’s first outfit?”

and “What’s your baby’s favourite toy?” will lead to more questions and more conversation.

Once you get talking, you might find it easier than you thought, and who knows where the conversation will lead you. Life is a constant learning curve for us all.

Hayley Goleniowska is a writer and speaker, working with parents, teachers and medical professionals as well as self-advocates who have Down’s syndrome.

Her work is internationally renowned and her blog Downs Side Up has won many awards for its outstanding contribution to society. Through her many media interviews she also hopes to gently change the public’s perceptions of the condition.

Hayley and her eldest daughter Mia have recently launched a book for children, entitled I Love You Natty: A Sibling’s Introduction to Down’s Syndrome.

Hayley brings her expertise on talking about Down’s Syndrome for New Parents to Fink Cards where she will publish a new pack to help new parents find the early years’ support they need.

Hayley is passionate about increasing the support that parents receive after unexpected news, whether that comes during pregnancy or after a baby’s birth. By easing their fears and helping them to sort the facts from the myths that often surround Down’s syndrome she hopes to buy them precious quality time with their newborns. For more information visit

6 C’s – You Can Help Expand Our Community

We in LD are very good at networking: Our Facebook pages and twitter feed are testaments to that but maybe (no definitely) we need to show the wider family of nursing how much we can and do share!  I have recently started some work with Paula Smith from NHS England: she is the Project Manager for Improving Lives & Learning Disability Safety, Team Nursing Directorate NHS England. Email:

We both realised that there needs to be more joined-up communication between the learning disability nurse community so can I please encourage you to join the LD community on the 6 C’s it’s a mine of information!

Learning Disability Student Nurse Blogs About Kingston 2014

Learning Disability Student Nurse, Lucy Cleden-Radford has been writing about PC2014, and it is great to hear that our events are such a success with those they are aimed at. If you want to read Lucy’s report of the day, head over to her blog.

Lucy’s Blog

Positive Choices 2014 saw a great collection of events and speakers all group together in Kingston to work together to support LD nurses.



Decide, Commit, Proceed is a Resounding Success

The Decide, Commit, Proceed Dinner was a resounding success, and all involved had an excellent evening whilst also raising awareness for the importance of Learning Disability Nurses and student support.

It was to support PCLeads, a leadership course for third year Learning Disability nurse students than spanned over a two day period. The intensive conference aimed to strengthen leadership in clinical practice, and was part of the decide, commit proceed positive choices programme. Overall, it was part of the Strengthening the Commitment effort, and below you can see some images of the event:

dinner getting ready


Helen Laverty Hosts the 10th Positive Choices Event

The brilliant Helen Laverty hosted the 10th Positive Choices Conference for Learning Disability Nurses and Professionals at Kingston University in March 2014.

At this event, the inspiring video – Down Side Up was screened, and it was a resounding success. The video, from the BiBs Inspire and Commentary categories for charity and campaigning work, is a must watch, and the blog, a must read.

You can visit the blog here